In April of 2008, I created a website called Alcoholic Pancreatitis. From researching my disease, pancreatitis, I realized that doctors didn't know much about pancreatitis, that the disease was often left undiagnosed until at a terminal state, that people who suffered from this disease were often blindsided by the disease and hope and a cure was no on the forefront of medicine. In fact, doctors seem to just accept that if you have pancreatitis there is nothing they can do for you beyond pain killers and that too little is known about the disease for traditional western medicine to be able to help us.
Hopeless, helpless suffering wasn't and still isn't an acceptable solution for me. I don't want life put in the hands of someone who has that mentality, belief or limited knowledge about my disease. Therefore, I started a website to track my disease and my progress and to share my experience with chronic pancreatitis with others who suffer from the disease of the pancreas.
This blog, Living With Pancreatitis, came out of my website. From a purely technical position, the blog is easier to manage.
Although many factors probably contributed to me getting chronic pancreatitis. I doubt I would have it if I hadn't been drinking alcohol day-and-night for an extended period of time before I went into the hospital and was diagnosed.
Once hospitalized for Severe Acute Pancreatitis, I was told that I would never be able to drink again. I already knew this because I had self-diagnosed the disease before being admitted to the hospital.
I no longer drink alcohol. I will never drink alcohol again.
I want to live. My pancreas cannot tolerate alcohol. If I drink, I will die.
There is a very good chance my chronic pancreatitis will turn into pancreatic cancer if the chronic pancreatitis doesn't kill me first. I completely accept this.
My goal is to live as long as possible. I'm not done with this life. There are a lot of things I want to do. Therefore, extending my life as long as possible is extremely important to me.
Drinking alcohol would be the equivalent of committing suicide. I don't want to die. I wanted to drink through a period of my life and stop when it was over. I didn't realize I could get pancreatitis. I didn't realize the drinking so much could kill me. I was ill educated on the subject. I am not today. So, today, I do not drink alcohol.
It feels good to be able to share my story of pancreatitis with others who are experiencing similar difficulties.
Living with pancreatitis can be scary and isolating. Doom and gloom can be a bad neighbor constantly knocking at our door when we are mid crisis and our pancreas is inflamed and we can't get the flare-up under control. But the pain can be temporary and there are things we can do to allow our pancreas to heal - such as not drinking alcohol, sometimes refraining from eating for a days or weeks and reducing stress levels.
It is okay to be afraid. This disease is very, very deadly and extremely painful at times. Be patient. Don't expect your pancreas to heal today, tomorrow, this week, this month or ever really... Do expect that times of crisis can diminish over time and the pain you are experiencing can leave you and you can begin to live a softer, gentler existence with little-to-no pain a daily basis.
Do know that when you give your pancreas the love and care it needs the pain you are feeling can subside and you can regain a normal-to-relatively normal life.
The last time I thought my chronic pancreatitis might win and kill me was over a year ago. It's a horrible feeling. Don't give up hope even if it feels like you may never get well. Feelings aren't facts.
Deal with what is in front of you. When I am in crisis mode - meaning my pancreas has flare-up and as a result I can not at that time function normally in life - I must refrain from food and stress.
Fear doesn't help. When my pancreas is inflamed I need to deal with it not live in the false belief that it'll never get better and I will die. Love yourself and know that this too shall pass. Patience, time and the loving care you give to your pancreas will help you recover as quickly and in the best health as possible.
It's easy to worry about dying from pancreatitis when you can't eat and you're in constant pain but the reality is that you probably won't die from starvation. If needed, hospitals can hook you up to an IV to ensure you get enough nutrients to keep you alive.
No food. No alcohol.
Stress is a killer. Stress is not the friend of the pancreas.
Alcohol is the worst enemy of the pancreas. It can send the system into a state of shock and kill you immediately. So, no booze. Even if you want it. Even if you think it is okay. It is not okay EVER!!!!
If you are having a hard time not drinking alcohol then you are are probably an alcoholic because non-alcoholics don't have a problem not drinking. Alcoholics Anonymous is a place where many people go if they have a problem putting down the drink. If you are used to drinking and all of a sudden you can't drink anymore, it can be helpful to be around people who are also not drinking. AA is a place to find people who live life on life's terms while not drinking alcohol.
As a person who suffers from chronic pancreatitis and who wants to live as long as possible, I no longer drink alcohol. My life and longevity is much more important than booze.
If you are unhappy with your life. Change it. No really. I mean it. If you are here, you are probably on death's doorstep. Therefore, you have nothing to lose by reinventing yourself into the person you want to be. The person you've been stuffing through drinking alcohol. The person you've told yourself you cannot be or you do not have the right or time to become.
Now is the time to be the YOU that makes YOU happy. Happiness and joy are an important part of my healing decreasing stress has the potential to help me live longer!
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I'm so happy to stumble on your site have been struggling with CP for 2yrs was acute then to cp and had a MRCP and 97% not cancer?? we know what that could mean and have MEDICAL omg the worst so I am waiting for approvals to see aspecailist to get blood checked on a reg basis..trying to figure this out on my own these mesical docs are the worst..thank you lynda
ReplyDeleteYour welcome, Lynda! I have found that the tea concoctions which I mention on this site (Chrissy's Tea, in particular) can bring my levels back to a normal range within hours. Mostly the herbs in the teas are anti-inflammatories and things that help the liver, pancreas, kidney or whatever seems to be the trigger point. Ginger out of the jar (the pink sushi ginger which can be bought at any grocery store) also helps when my pancreas is feeling inflamed.
DeleteBest!
Christine